I have some really amazing news! Even as I am typing, I can’t help but smile! This has been brewing for a couple weeks now, but I’ve been hesitant to announce it or accept it for certain because I thought it was too good to be true. But, we saw Henry’s neurologist today and she removed Henry’s Cerebral Palsy diagnosis! She even went so far as to say that he “looked perfect!” She used words like “developmentally appropriate” and “discontinue services.” She even said “you don’t need me anymore” (but said we could follow up in 6 months just to be sure!) Even after I grilled her about my laundry list of concerns and red flags for autism and other developmental issues, she said, “He is going to be just fine. Some day you will tell him the story of the scare he put you through when he was a little baby.”
I really can’t believe it.
But I have to tell you. I will. I will believe it because it is amazing news! And we could all use a little of that!
I know I don’t write about Henry’s diagnosis very often. It’s been for a few reasons. One is that Finn’s autism helped me accept Henry’s diagnosis. It didn’t decimate me or wrack me with worry. The doctors told us that Henry’s CP would unfold how it would and all we could do was wait and see. We were already doing everything we could (Early Intervention physical therapy since he was five months old and a teacher once a week since he was one). Henry would show us what he could and couldn’t do, so I decided to let him. Finn’s autism taught me not to let a label limit my expectations.
And I’ve always believed in my heart of hearts that Henry would be just fine. With or without a diagnosis, Henry would be fine because he is such an amazing boy. There is a light that shines out of him that you only have to meet him to see. He has a twinkle in his eye and a sparkle in his smile. He is absolutely infectious. I know that no matter what, he will do great things. He already has. He started walking at 18 months and since then, his language exploded! He has gone from having “no words” at 15 months (no recognizable words to the doctors, I thought he had words!) to having almost 100 words at 21 months! The spasticity (tightness in his muscles) is almost completely gone (thanks to bracing since he was just weeks old and a really great physical therapist!) He is practically running around the house!
With every surefooted step he takes, a little piece of me jumps for joy! I still can’t believe it! But I will enjoy getting used to it! So, won’t you please allow me this victory lap? I don’t want to tempt fate, but like I said, we could all use a little good news.